FA Voices

People living with Friedreich’s ataxia (FA) each have their own unique stories to share. Here, you can listen to their stories about diagnosis, management of FA, and finding the emotional support they need during their journey with FA.

FA Talks Podcast Series

Listen to a podcast that gives a voice to those most closely impacted by FA. You’ll hear authentic dialogues on what it’s like living with and managing FA from patients, caregivers, and advocacy groups.

Check back often for more episodes.

Be sure to watch the Living with FA video series.

Episode 1: Meet the Cast of FA Talks

This introductory episode of FA Talks welcomes some individuals living with FA and their caregivers as they talk about their experiences with Friedreich’s ataxia. Guest hosted by Kyle Bryant and Sean Baumstark.


 

Episode 2: Hackathon

People living with Friedreich’s ataxia (FA) sometimes have difficulty with daily activities. This episode dives into the many life hacks that people living with FA and their caregivers have instituted into their daily lives. Guest hosted by Kyle Bryant and Sean Baumstark of the Two Disabled Dudes podcast.


 

Episode 3: Healthy Conversations

Friedreich’s ataxia (FA) is a rare disease and is often misunderstood by those who are not affected by it. This episode explores the ways to talk about FA with those who may not be familiar with the condition. Guest hosted by Kyle Bryant and Sean Baumstark of the Two Disabled Dudes podcast.


 

Living with FA Video Series

Watch people who are living with FA talk about how they’ve managed their disease, found emotional support during their FA journey, and developed strong relationships with their doctors.

Managing FA

Emotional Support

The Doctor-Patient Relationship

The Faces Behind FA

Meet the people behind the Living with FA video series.

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Find downloadable resources and information for you and your patients.

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Download the Let’s Talk FA Brochure for your patients to give them helpful information when talking about FA.

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Find out about support groups and advocacy.

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